What is your reaction to the thought: “accommodations equal failure”?
January 19, 2018
by Lisa Genova
Genre/categories: fiction, women’s fiction, traumatic brain injury, family life
In this compelling story, thirty something Sarah is a career driven, over achieving, competitive type A, and perfectionist mom of three. She and her husband live near Boston and manage a frantic and fast paced life as they each pursue careers and tend to the family’s schedule for soccer practice, piano lessons, parent/teacher conferences, and day care. As they are striving to have it all, a car crash leaves Sarah with a traumatic brain injury called “left neglect.” As the story unfolds, readers journey alongside Sarah as she fights to regain her independence and seeks to answer questions about an uncertain future. While Sarah experiences relinquishing all the control she thought she had to her once absent mother and her physical therapists, she begins to envision a life apart from the world of conference calls and spreadsheets and wonders if a happiness and peace greater than the success she has known is within her grasp.
Amazon Rating (January): 4.5 Stars
Readers may recognize Lisa Genova as the author of the best-selling book Still Alice or may have seen the movie based on the book. Genova’s degrees are in biopsychology and neuroscience and her fiction work is focused on writing characters who live with neurological diseases and disorders such as Alzheimer’s, autism, Huntington’s disease, ALS, and traumatic brain injury.
In addition to an unforgettable lesson in NO TEXTING OR PHONE WHILE DRIVING, readers will find an inspiring story of courage and determination in the face of a tragic and devastating traumatic brain injury.
Sarah is left with the disability of “left neglect” which means that she’s unaware of anything on her left. She even has difficulty finding her left hand (In a humorous and light-hearted moment she hints to her husband that a big brilliant diamond for her left hand might better help her to notice and find her hand!).
“The first step in my recovery is to become aware of my unawareness, to constantly and repeatedly remind myself that my brain thinks it’s paying attention to all of everything but in fact, it’s only paying attention to the right half of everything and nothing on the left.” ~Sarah
As Sarah is able to come home, she begins to reflect about the way she and her husband had been living which up until now had meant not even taking advantage of paid vacations so that they could work more to get ahead. In a conversation with her husband, Sarah thinks:
“Pre-accident me nods, understanding the life-and-death stakes [of his job] completely. He’s doing exactly what I would’ve done. But I’m worried more about him than his job right now and can see what pre-accident me is blind to–that he and his job are, in fact, two separate things.” ~Sarah
Given the high achieving and perfectionist competitor that Sarah’s always been in life, part of her struggle in therapy is the temptation to equate accommodations with failure. This tension is especially painful as she contemplates the dilemma of giving up skiing or skiing with accommodations.
NEHSA. I appreciate information shared in the book about the New England Handicapped Sports Association (NEHSA) and the thoughts Sarah has about her experience as it relates to her disability and her therapy.
Themes: If you’ve been reading my reviews you know that the presence of substantial themes is a huge component in my final rating of a book. Important themes in this book include reconciliation, determination, courage, humor, forgiveness, finding peace, and building your best life with a visible or an invisible disability. In addition to interpreting the title on a literal level (the disability), I began to think of the title in terms of all that had been neglected in Sarah’s life as she chases her vision of success. Perhaps there is happiness and peace that is greater than the success one can find in competitive cooperate America.
4 or 5 stars? While I like that the author drops readers right into the action of Sarah’s busy life and readers are engaged from the beginning, I think the conclusion could have been more fully developed so that readers could experience it unfolding instead of writing it like a summary. Perhaps the inciting incident could have been moved ahead in the story (readers understand right away how crazy her life is and some of these details were a bit tedious and could have been edited out) and more time could have been allotted to developing the conclusion. This is a minor concern and falls into the category of personal preference. The overall experience of reading the book is a solid 4 for me, and I appreciate the positive, hopeful, and uplifting closure that the author brings to Sarah’s situation. In addition, I think that reading and understanding more about disabilities is a beneficial pursuit in my reading life.
Recommended? I highly recommend this book for readers who have become acquainted with this author through reading Still Alice, who might be challenged by a thoughtful journey into living with a disability, and who enjoy stories of resiliency, bravery, courage, hope, forgiveness, and determination.
My Rating: 4 Stars
Meet the Author, Lisa Genova
Lisa Genova graduated from Bates College with a degree in Biopsychology and has a Ph.D. in Neuroscience from Harvard University. Acclaimed as the Oliver Sacks of fiction and the Michael Crichton of brain science, she is the author of the New York Times bestselling novels STILL ALICE, LEFT NEGLECTED, LOVE ANTHONY, and INSIDE THE O’BRIENS.
Lisa’s writing focuses on people living with neurological diseases and disorders who tend to be ignored, feared, or misunderstood, portrayed within a narrative that is accessible to the general public. Through fiction, she is dedicated to describing with passion and accuracy the journeys of those affected by neurological diseases, thereby educating, demystifying, and inspiring support for care and scientific research. She has written about Alzheimer’s disease, traumatic brain injury, autism, Huntington’s disease, and ALS.
STILL ALICE was adapted into a film starring Julianne Moore, Alec Baldwin, Kristen Stewart, Kate Bosworth, and Hunter Parrish. Julianne Moore won the 2015 Best Actress Oscar for her role as Alice Howland.
In 2015, Lisa was named one of the U.S. Top 50 Influencers in Aging. She received The Pell Center Prize for Story in the Public Square in recognition of “a contemporary storyteller whose work has had a significant impact on the public dialogue,” The Sargent and Eunice Shriver Profiles in Dignity Award, The Global Genes RARE Champions of Hope Award, and The American College of Neuropsychopharmacology Media Award for Informing the Public about Treatment and Ongoing Research in Medical Illness.
In 2016, she received an Honorary Doctorate of Humane Letters from Bates College, The Alzheimer’s Association’s Rita Hayworth Award, and The Huntington’s Disease Society of America Community Awareness Award.
Her 2017 TED talk, “What You Can Do To Prevent Alzheimer’s,” was seen by over 2.5 million viewers in its first few months.
Her fifth novel, EVERY NOTE PLAYED, is about ALS and will be published March 20, 2018.
Happy Reading Book Buddies!
“Ah, how good it is to be among people who are reading.”
~Rainer Maria Rilke
“I love the world of words, where life and literature connect.”
~Denise J Hughes
“Reading good books ruins you for enjoying bad ones.”
~Guernsey Literary and Potato Peel Pie Society
A book that I’d recommend for our protagonist, Sarah, to read next in her journey is Present Over Perfect: Leaving Behind Frantic For a Simpler, More Soulful Way of Living by Shauna Niequist.
This week I’m reading The Library at the Edge of the World by Felicity Hayes-McCoy (but it’s a slow read for me), so next week look for a review of Secret Daughter by Shilpi Somaya Gowda (and possibly Library at the Edge of the World if I finish it).
(Amazon information in links above)
What are you reading this week?
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Have you read Still Alice or Left Neglected?
Do you think it’s beneficial to read books that feature disability topics?
What do you think about Sarah’s concern that “accommodations equal failure”?
Have you read any of Lisa Genova’s other titles?
What are you reading this week?